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研究生:張瑜玲
研究生(外文):Yu-Ling Chang
論文名稱:先天性心臟病童術後加護期父母需要及滿足程度之探討
論文名稱(外文):Needs and Satisfation of Parents having Children undergone Intensive Post-operation Care for Total Correction of Congenital Heart Disease
指導教授:王如華王如華引用關係
指導教授(外文):Ru-Hwa Wang
學位類別:碩士
校院名稱:國防醫學院
系所名稱:護理研究所
學門:醫藥衛生學門
學類:護理學類
論文種類:學術論文
論文出版年:1999
畢業學年度:87
語文別:中文
中文關鍵詞:先天性心臟病加護病房父母需要滿足程度
外文關鍵詞:congenital heart diseaseintensive care unitparentsneedssatisfation
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本研究目的在探討有關先天性心臟病童術後加護期父母需要及滿足程度,並瞭解影響需要及滿足程度的相關因素。採「調查研究法」設計,以立意取樣,在北市兩所醫學中心加護病房收案,共發問卷66份,回收有效問卷為48份,即來自24位病童父母親雙方。資料收集過程,於病童手術完畢後住進加護病房24(含)小時內,評估父母的「基本資料」及「先天性心臟病童術後加護期父母需要問卷調查表」。當病童住進加護病房24至72(含)小時間,評估父母的「先天性心臟病童術後加護期父母需要滿足程度問卷調查表」。並將有效問卷以SPSS8.0 / Win95和STATA5.0 / Win95套裝軟體建檔,以次數、百分比、平均數、標準差、排序、卡方檢定、部份相關法及GEE方法進行資料分析。
研究結果顯示,父母最需要的類別為「保證的需要」、「有關訊息獲得的需要」及「陪伴病童的需要」;較不需要的類別為「舒適的需要」及「支持的需要」。父母較不滿足的類別為「有關訊息獲得的需要」、「舒適的需要」及「支持的需要」。
整體而言,需要與滿足程度平均得分成正相關(r=0.39,p<0.05),且父母需要得分越高,則滿足程度得分越高;父母需要得分越低,則滿足程度得分越低。
影響父母需要及滿足程度相關因素,在父母背景資料方面:年齡每增加一歲,「整體需要」平均得分減少0.934分(總分為4分)。父母教育程度在專科以上(含)者,「保證的需要」類別平均得分,比父母教育程度在高中以下(含)者高。有照顧加護病房病患經驗的父母,「整體需要」及「有關訊息獲得的需要」類別平均得分,比無照顧加護病房病患經驗的父母低。有家屬具有醫學背景的父母,「陪伴病童的需要」及「舒適的需要」類別平均得分,比無家屬具有醫學背景的父母高。父母雙方對於「有關病童訊息獲得的需要」類別,會因本身有無職業有所不同,母親有職業者需要高於母親無職業者;反之,父親無職業者需要高於父親有職業者。病童疾病嚴重程度越重者,父母「陪伴病童的需要」類別滿足程度平均得分越低。病童背景資料方面:家中排行為老大者,父母「整體需要」、「保證的需要」及「舒適的需要」類別需要平均得分及「支持的需要」類別滿足程度平均得分,比病童家中排行非老大者高。
整體而言,研究結果能提供加護病房護理人員,在面對病童術後加護期時父母需要的參考,並提供護理人員評估影響父母需要的因素,以協助父母順利的渡過這些情境,進而促進病童健康的提升及維持家庭系統的完整。
The purpose of this study was to explore needs and satisfaction of parents having children undergone intensive post-operation care for total correction of congenital heart disease, as well as, to investigate the variables of parents'' needs and satisfaction. "Survey design" and "Purposive sampling" had been used in this study. These samples were chose from intensive care units (ICUs) of two medical centers in Taipei. There are sixty-six questionnaires were given to parents, and forty-four were returned, that is to say, those return of questionnaires were from twenty-four sick children. "Parents'' demographic data" and "Critical Care Parents Needs Inventory" were collected, when child was admitted to ICU within the first 24-hours during post-operation. " Critical Care Parents Needs Satisfaction Inventory" also have been assessed, when child was admitted to the ICU after 24 to 72 hours. Those valid questionnaires were stored to computer program which are package software of SPSS8.0/Win95 and STATA5.0/Win95. The effective data were analyzed by frequency distribution, percentage, mean, standard deviation, rank, partial correlation and general estimating equation (GEE).
The result showed that, the most needs were classified into three categories:the need of "assurance", "acquirement of information" and "parents'' company", on the other hand, parents the less needs were "comfort" and "support". Furthermore, the levels of satisfaction were listed respectively:the satisfaction of "assurance", "parent''s company", "acquirement of information", "comfort" and "support"
To sum up, a significant positive relationship(r=0.39, p<0.05) existed between all needs and satisfaction. Moreover, the score of parents'' needs is increasing, than, the level of parents'' satisfaction is increasing. The score of parents'' needs is decreasing, than, the level of parents'' satisfaction is decreasing.
The variable of parents'' needs and satisfaction about parents'' demographic data is that, all mean scores were decreased 0.934 by increasing every one year(sum=4). The average of score for parents whose educational background are above senior college is higher than those whose education background are under senior high school. Parents who have experience of caring patients in ICU got lower mean score than non-experience parents in "need of assurance and acquirement of information". Parents whose families have medical background had higher mean scores than those whose families have not medical background in "need of parents'' company" and "need of comfort". Parents in the categories of "acquirement of information" which depends on having job or not. The mothers who have job had higher mean scores than those who have no job. On the contraries, the fathers who have no job had higher mean scores than those who have job. The child who was serious ill had lower mean scores of satisfaction in "need of parents'' company". Children’s demographic data is that, the oldest child in the family had higher mean scores in "need of entirety", "need of assurance", "need of comfort" and "need of support".
To sum up, the results of this study provide some suggestions for the critical care staffs to help parents whose child is admitted to ICU after post-operation. Also, staffs can realize those variable of parents'' needs and satisfaction in order to help parents to overcome dilemmas. Consequently, the child''s health condition and the whole family will be promoted.
第一章 緒論
第一節 研究動機及重要
第二節 研究目
第三節 研究問
第二章 文獻查證
第一節 先天性心臟
第二節 需要及滿足
第三節 病童術後加護期父母需要及滿足程度
第三章 研究架構
第一節 研究架構
第二節 研究假設
第三節 名詞界定
第四章 研究方法
第一節 研究對象
第二節 資料收集步驟
第三節 人權保護
第四節 研究工具
第五節 資料分析
第五章 研究結果
第一節 研究對象之敘述性資料
第二節 先天性心臟病童術後加護期父母需要及滿足程度分析
第三節 影響先天性心臟病童術後加護期父母需要相關因素
第四節 影響先天性心臟病童術後加護期父母需要滿足程度相關因素
第六章 討論
第一節 研究對象敘述性資料分析
第二節 先天性心臟病童術後加護期父母需要及滿足程度關係分析
第三節 影響先天性心臟病童術後加護期父母需要及滿足程度相關因
素分析
第七章 結論與建議
第一節 結論
第二節 護理上的應用
第三節 研究限制與建議
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1. 蕭海蘭. (民79). 心臟手術病患之加護護理. 榮總護理, 7(1), 56-59。
2. 趙明玲、高淑芬、葉健全. (民87). 探討父母親照顧家中長期重度慢性疾病兒的感受. 護理研究, 6(3), 219-229。
3. 趙子健、鄭國琪、游堂振、賴曉亭、郭束民、翁仁崇. (民75). 心臟手術後病人之照顧. 臨床醫學, 18(2), 169-183。
4. 董芳苑. (民81). 談台灣社會宗教的醫學倫理. 護理新象, 2(8), 450-460。
5. 程子芸. (民82). 父母對先天性缺陷兒的反應型態及影響因素:一個探討性的概念模式. 護理雜誌, 40(3), 79-86。
6. 陳銘仁 (民83). 心臟病嬰兒和兒童的生長與發育. 健康世界, 103(223), 80-87。
7. 黃碧桃. (民78). 小兒心臟病童應接受那些檢查. 臨床醫學, 23(2), 133-136。
8. 穆佩芬. (民84). 家庭護理之理論及臨床應用. 榮總護理, 12(4), 244-251。
9. 范君瑜. (民85). 重症頭部外傷病人家屬之需求及其影響因素探討. 護理研究, 4(3), 273-283。
10. 洪麗虹. (民81). 嬰兒期先天性心臟病之治療與護理. 榮總護理, 9(4), 354-361。
11. 呂鴻基. (民72). 中國人先天性心臟病之特徵與治療‧當代醫學, 10(9), 17-18。
12. 李坤崇. (民77). 馬斯洛需求層次論及實徵性研究之分析. 臺南師院學報, 21, 207-259。
13. 白瑞生、黃愛娟. (民80). 慢性疾病兒童對家庭的影響. 榮總護理, 8(1), 32-39。
14. 王秀紅. (民83). 照顧者角色對婦女衝擊:護理的涵義. 護理雜誌, 41,(3), 18-23。
 
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