臺灣博碩士論文加值系統

本研究旨在探討罹患癌症少年的生活經驗。研究設計採取胡塞爾的現象學研究法，於台灣中部某醫學中心小兒科病房立意取樣，收案條件包括年齡層介於十一至十八歲、病理報告確立為癌症、能夠說出自身疾病診斷、可以用國台語溝通、經家長(監護人)同意、且願意參與試驗，但排除具有認知障礙者。以一對一非結構式訪談的方式收集資料，訪談資料採用Colaizzi’s (1976)分析法。資料收集至飽和狀態共會談16位少年。研究結果共有四個主題及十七個次主題，分別為無伴奏樂章 (延宕的學校課業、受限的娛樂活動、疏離的同儕互動、單調的居家生活)；苦難迴旋曲 (症狀的困擾、治療的苦楚、復發的折磨、就醫的束縛、食療的負擔)；心弦五重奏 (懼怕、擔憂、難過、生氣、孤單)；向陽詠嘆調 (緊密的家庭關係、樂觀的正向思維、健康的生活習慣)。由此研究結果明顯可見，少年罹癌後面臨許多痛苦和壓力，因此，建議醫療人員透過對他們生活經驗的瞭解，提供身心靈整體性照護措施，提高罹病後的生活品質。研究結果亦建議教育當局，規劃符合罹癌少年需求的教育方案，如網路遠距教學等。再者，亦建議護理人員走入校園，提供罹癌少年就讀班級師生適當的衛生教育，讓他們瞭解何謂兒童癌症及如何與罹癌少年相處。

This study explores the life experiences of young youths with cancer in Taiwan and is designed by using Edmund Husserl’s Phenomenology method. Purposive sampling and case selection require participants to be between ages of eleven to eighteen whose cancer is pathologically confirmed, to be self-identified as cancer patients and to be able to communicate in Taiwanese or Chinese. They must acquire their parents or guardians’ consent before participation. Data of each one-on-one interview are analysed by Colaizzi''s seven stages method (1976) where sixteen cases studied are divided into four main themes and seventeen sub-themes. First main theme is unconnected solo with subthemes of delayed education, limited activities, absence of peer relationships, and dull life. Second one is suffering rondo and it includes sufferings from symptoms, sufferings from therapies, torment from cancer recurrence, the feeling of being trapped in hospital, and the burden of food therapy. Next theme is string quintet of heart, which includes fear, worry, sadness, anger, and loneliness. Finally we have sunward aria that includes strong family relationships, optimistic thinking and healthy lifestyles. These young youths with cancer are under enormous suffering and stress and in order to improve their quality of life, health care providers should develop not only physical care but also emotional care by understanding their life experiences. This study also suggests that educational institution should establish certain learning system suitable for young patients such as distance learning. It’s also beneficial that nurses conduct health education classes directly in their schools so these young patients'' classmates can become more aware and sympathetic of their illness.

目 錄
頁數
中文摘要…………………………………………………………………...i
英文摘要………………………………………………………………….iii
目錄………………………………………………………………………..v
第一章 緒論
第一節 研究動機與重要性…………………………………………..1
第二節 研究目的………………………………………………..........3
第三節 名詞解釋………………………………………………..........3
第二章 文獻查證
第一節 兒童癌症……………………………………………………..4
第二節 少年對疾病的認知…………………………………………16
第三節 癌症對少年的衝擊…………………………………………22
第三章 研究方法
第一節 描述性現象學研究法……………………………………..32
第二節 研究對象選取……………………………………………..34
第三節 研究進度…………………………………………………..35
第四節 資料收集…………………………………………………..36
第五節 資料分析…………………………………………………..38
第六節 研究嚴謹度………………………………………………..39
第七節 研究倫理…………………………………………………..41
第四章 研究結果
第一節 研究對象基本資料………………………………………..44
第二節 研究結果…………………………………………………..46
主題壹、無伴奏樂章…………………………………………...48
主題貳、苦難迴旋曲…………………………………………...54
主題叁、心弦五重奏…………………………………………...70
主題肆、向陽詠嘆調…………………………………………...77
第五章 討論
第一節 無伴奏樂章…………………………………………………82
第二節 苦難迴旋曲…………………………………………………86
第三節 心弦五重奏……….…………………………………………92
第四節 向陽詠嘆調……….…………………………………………95
第六章 結論與建議
第一節 研究者的反思……………………………………………….97
第二節 摘要研究結果…………………………………………….....99
第三節 研究限制…………………………………………………...104
第四節 研究建議與應用…………………………………………...104
參考文獻
中文文獻……………………………………………………………..108
英文文獻……………………………………………………………...111
附錄
附錄一 人體試驗計畫受試者同意書……………………………....119
附錄二 人體試驗研究許可書……………………………………....123
圖表
表 一 研究結果主題及次主題…………………………………….46

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