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研究生:許士茵
研究生(外文):Shih-YinHsu
論文名稱:慢性腎臟疾病之中年男性患者的生活經驗探討
論文名稱(外文):Exploring lived experiences of mid-adulthood male diagnosed with CKD
指導教授:顏妙芬顏妙芬引用關係
指導教授(外文):Miao-Fen Yen
學位類別:碩士
校院名稱:國立成功大學
系所名稱:護理學系碩博士班
學門:醫藥衛生學門
學類:護理學類
論文種類:學術論文
論文出版年:2012
畢業學年度:100
語文別:中文
論文頁數:79
中文關鍵詞:生活經驗慢性腎臟疾病早期慢性腎臟疾病中年男性
外文關鍵詞:lived experiencesChronic kidney diseaseCKDearly stage CKDmid-adulthood male
相關次數:
  • 被引用被引用:2
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  • 下載下載:56
  • 收藏至我的研究室書目清單書目收藏:1
目前國內外許多關於末期腎病患者的相關研究資料,以量性測量為大宗,然前三期腎病患者生活經驗的研究不多,而前期病程的無症狀特性,容易遭受忽略。本研究以敘事研究法,探討中年男性患者在獲知診斷後的生活經驗,著重於工作、人際關係與飲食。共10位罹患慢性腎疾病之中年男性患者面對面受訪,為增加研究結果可信度,研究者於資料分析後佐證受訪者檢核(Member checks)、同儕評論(Peer Review)與專家角色稽核(Debriefing),歸納出四大主題為:(1)正常生活步調面對生病,但會擔憂惡化;(2)雖生病但未影響工作,如過往維持著肩負家計與父親的角色;(3)既使生病,但面對家人及朋友仍期待有付出與貢獻的機會;(4)飲食知易行難。
本研究結果建議相關照護人員於照護前期無症狀之中年男性患者時,可(1)於初發病急性期與疾病狀況似乎惡化時,依病人個別性提供病情告知之喜好資訊。(2)提供不同工作型態與職務之個別性腎臟保健教育。(3)瞭解實際生活之困境,如:外食的難處、無法長期維持營養師建議之飲食等,並與個案討論解決策略。研究結果可以增加臨床護理人員對早期慢性腎臟疾病之中年男性患者生活經驗的了解,做為提供衛教與介入疾病控制之依據。

There are various chronic kidney disease (CKD) researches, particularly on the ESRD, but few focus on early stage CKD patients’ lived experiences. Early CKD symptoms are easily ignored since its unobvious characteristics. In this inquiry study using Narrative Research Methods, we explored living experiences of mid-adulthood male diagnosed with CKD, particularly in working experiences, interpersonal relationships and dietary habits. Ten middle-aged male patients were interviewed in person in this study. In order to enhance the trustworthiness of the study results, three strategies were used after the data analysis: member checks, peer review and debriefing. Four major themes were identified: (1) keeping the same life pace as usual with concerns of deterioration; (2) continuing to support their family and play the role of father; (3) hoping to contribute in relationships of family and friends despite of illness; and (4) being challenged to keep a healthy diet.
The findings of this study suggest clinical professionals: (1) Providing preferred information according to their personality, particularly when the first onset or disease situation seem to deteriorate. (2) Offering specialized health care information to patients based on their career. (3) Understanding CKD patients difficulties in daily life, such as the routine of eating out and the challenge of maintaining long-term healthy diet, discuss about possible solutions with them. The findings assist health care providers in education planning and implementation and support programs for patients and families.

目錄
中文摘要 I
Abstract II
誌謝 III
第一章 緒論 1
第一節 研究背景與動機 1
第二節 研究目的與研究問題 3
第三節 名詞解釋 3
第二章 文獻探討 5
第三章 研究方法 13
第一節 敘事研究取向 13
第二節 研究設計 15
第三節 研究對象 16
第四節 研究工具 16
第五節 資料收集方式 19
第六節 資料分析 19
第七節 研究可信度 23
第八節 倫理考量 26
第四章 結果 27
第一節 基本資料 27
第二節 慢性腎臟疾病之中年男性患者的生活經驗 28
第五章 討論 51
第六章 結論與建議 58
第一節 結論 58
第二節 未來研究建議 61
第三節 限制 63
附件一 初步訪談大綱 65
附件二 正式訪談大綱 66
附件三 訪談札記 67
附件四 研究團隊檢核表 68
附件五 受訪者檢核表 70
附件六 同意臨床試驗證明書 74
參考文獻 75

表目錄
表一 轉錄逐字稿時所運用之文字符號與其意涵 20
表二 擷取轉錄文本之片段 21
表三 研究參與者人口學資料 27
表四 研究結果之主題、類別與次類別 28



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