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研究生(外文):Hsin-chieh Peng
論文名稱(外文):Information Needs Assessment for Cancer Patients
指導教授(外文):Kung-Jeng Wang
外文關鍵詞:cancer patientsinformation needsqualitative researchgrounded theory
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The purpose of this study is to find out “Information Needs for Cancer Patients”. By designing a semi-structure questionnaire to individually face to face interview with 13 cancer patients for this study, the whole 13 interviews is recorded on the digital file in order to minute word by word. Accordingly, the grounded theory as qualitative study approach is employed to build up a theory from our context. From this study it is shown that no matter what attitude of patients (active or passive), they all want to acquire the right and full information. With being different stages of treatment, patients still need lots of information needs but different parts. During treatment stage patients want the most is as to treatment and how to maintain/promote physical health to avoid recurrence; during the post-treatment stage they want the most is as for how to maintain/promote physical health to avoid recurrence and intangible supports. Moreover, the post-treatment patients brought out that having family supports is a big matter during having a therapy. On the other hand, it shows that the stage of treatment and post-treatment patients want the information the most is how to intake the knowledge of nutritional foods. Above all, it is difficult for them to acquire it. Due to not well physician-patients relationship and insignificant professional medical knowledge, patients can not distinguish what information is right or wrong. This study concludes that it is necessary for medical team and caregivers to be educated on better information needs giving training. With well-educated, it can help doctor-patients relationship. Also, another suggestion is to build a reliable channel between patients and hospital. Above two advices, hoping can be able to give a great assistance to all cancer patients who are in all stage of diagnosis, treatment, and post-treatment in the future. This is a very useful and important for them. Not only it can reduce the anxiety of patients and comfort their moods. Meanwhile, it can gain a trust in satisfaction.
中文摘要 I
Abstract II
Acknowledgements III
List of Figures V
List of Tables VI
Chapter 1 Introduction 1
1.1 Research background 1
1.2 Research motivation 2
1.3 Research purpose 2
Chapter 2 Literature Review 3
2.1 Information needs 3
2.2 Information source and information seeking behavior 5
Chapter 3 Research Methodology 8
3.1 Interview Questions design 8
3.2 Sample and data collection 9
3.3 Data Analysis 11
Chapter 4 Results 13
4.1 Characteristics of sample 13
4.1.1 Reason for seeing a doctor 13
4.1.2 Cause of having cancer 15
4.1.3 Understanding of information across the cancer trajectory 16
4.1.4 Attitude of receiving information 16
4.2 The barrier to get information is insufficient support 17
4.2.1 Need of a well physician-patients relationship 17
4.2.2 Need of a channel to obtain the information, no matter the information is by websites, books or others 21
4.3 Information needs 25
4.3.1 Available treatment options, benefits and side-effects 25
4.3.2 How to maintain/promote physical health to avoid recurrence 26
4.3.3 Support is everything 27
Chapter 5 Conclusion 32
5.1 Conclusion 32
5.2 Research limitation 34
5.3 Future research 34
References 36
Appendix A 42
Appendix B 45
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