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研究生:彭心潔
研究生(外文):Hsin-chieh Peng
論文名稱:癌症病人資訊需求評估
論文名稱(外文):Information Needs Assessment for Cancer Patients
指導教授:王孔政王孔政引用關係
指導教授(外文):Kung-Jeng Wang
口試委員:王孔政
口試日期:2012-07-17
學位類別:碩士
校院名稱:國立臺灣科技大學
系所名稱:科技管理所
學門:商業及管理學門
學類:其他商業及管理學類
論文種類:學術論文
論文出版年:2012
畢業學年度:100
語文別:英文
論文頁數:45
中文關鍵詞:癌症病人資訊需求質性研究紮根理論
外文關鍵詞:cancer patientsinformation needsqualitative researchgrounded theory
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本研究以探討「癌症病人資訊需求」為研究目的。以半結構化問卷、面對面,針對13位癌症病人進行質性訪談,整個訪談過程全數錄音並打成逐字稿,使用紮根理論作為質性研究的方法,從資料中建立理論。本研究發現不論癌症病人對資訊取得的態度是被動或主動,他們都非常渴望獲得資訊,且不同階段的癌症病人的資訊需求皆不相同,治療中的病人最想要獲得有關治療及如何維持/促進身體健以避免復發等資訊;治療後的病人最想要獲得如何維持/促進身體健以避免復發及支援(無形的支援)。此外,治療後的病人在訪談過程中,亦強調希望在治療階段中能獲得家人的支持(有形的支援)。另本研究可明顯發現,不論是治療中或已完成治療的病人,二者最想取得營養攝取方面的知識。然而,以上所提出的資訊需求,對癌症病人而言,要取得是有困難的。第一、他們最想要從醫生處獲得資訊而礙於非良好的醫病關係;第二、礙於專業知識的不足,使癌症病人無法分辨資訊來源及資訊內容的適切性。因此,本研究建議未來醫院可以加強護理人員的訓練,彌補醫生給予時間的不足。或是可以建立一具公信力且完整的資訊平台,不論是在診斷、治療或治療後,適時的提供有用的資訊與支援,對病人來說是重要的且有用的,其除了可以增加滿意度外,亦可以降低因為疾病所產生的焦慮、不安等情緒。
The purpose of this study is to find out “Information Needs for Cancer Patients”. By designing a semi-structure questionnaire to individually face to face interview with 13 cancer patients for this study, the whole 13 interviews is recorded on the digital file in order to minute word by word. Accordingly, the grounded theory as qualitative study approach is employed to build up a theory from our context. From this study it is shown that no matter what attitude of patients (active or passive), they all want to acquire the right and full information. With being different stages of treatment, patients still need lots of information needs but different parts. During treatment stage patients want the most is as to treatment and how to maintain/promote physical health to avoid recurrence; during the post-treatment stage they want the most is as for how to maintain/promote physical health to avoid recurrence and intangible supports. Moreover, the post-treatment patients brought out that having family supports is a big matter during having a therapy. On the other hand, it shows that the stage of treatment and post-treatment patients want the information the most is how to intake the knowledge of nutritional foods. Above all, it is difficult for them to acquire it. Due to not well physician-patients relationship and insignificant professional medical knowledge, patients can not distinguish what information is right or wrong. This study concludes that it is necessary for medical team and caregivers to be educated on better information needs giving training. With well-educated, it can help doctor-patients relationship. Also, another suggestion is to build a reliable channel between patients and hospital. Above two advices, hoping can be able to give a great assistance to all cancer patients who are in all stage of diagnosis, treatment, and post-treatment in the future. This is a very useful and important for them. Not only it can reduce the anxiety of patients and comfort their moods. Meanwhile, it can gain a trust in satisfaction.
中文摘要 I
Abstract II
Acknowledgements III
List of Figures V
List of Tables VI
Chapter 1 Introduction 1
1.1 Research background 1
1.2 Research motivation 2
1.3 Research purpose 2
Chapter 2 Literature Review 3
2.1 Information needs 3
2.2 Information source and information seeking behavior 5
Chapter 3 Research Methodology 8
3.1 Interview Questions design 8
3.2 Sample and data collection 9
3.3 Data Analysis 11
Chapter 4 Results 13
4.1 Characteristics of sample 13
4.1.1 Reason for seeing a doctor 13
4.1.2 Cause of having cancer 15
4.1.3 Understanding of information across the cancer trajectory 16
4.1.4 Attitude of receiving information 16
4.2 The barrier to get information is insufficient support 17
4.2.1 Need of a well physician-patients relationship 17
4.2.2 Need of a channel to obtain the information, no matter the information is by websites, books or others 21
4.3 Information needs 25
4.3.1 Available treatment options, benefits and side-effects 25
4.3.2 How to maintain/promote physical health to avoid recurrence 26
4.3.3 Support is everything 27
Chapter 5 Conclusion 32
5.1 Conclusion 32
5.2 Research limitation 34
5.3 Future research 34
References 36
Appendix A 42
Appendix B 45
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