中文部分
丁于倩(2011).治療性園藝活動對社區老人生活安適之成果.未出版之碩士論文,弘光科技大學護理研究所,台中。中華民國家庭照顧者關懷總會(2007).「家庭照顧者的壓力與負荷調查」,取自https://www.familycare.org.tw/about。
世界衛生組織(1948):世界衛生組織對健康的定義。Retrieved 2006-12-23 取自http://www.who.int/suggestions/faq/zh/index.html.
世界衛生組織生活品質問卷台灣版問卷發展小組(2005).台灣簡明版世界衛生組織生活品質問卷之發展及使用手冊(第二版)。
朱翠燕、李素卿、王祖琪、謝瑞雲、李秋玉、林秀麗(2010).女性照顧者負荷之質性研究.北市醫學雜誌,7(2),144-153。 doi:10.6200/tcmj.2010.7.2.05
吳玲瑜、李碧娥、許靖岱、黃桂香、白玉玲(2014).外傷病患主要照顧者的疾病意象、壓力與生活品質之探討.護理暨健康照護研究,10(3),199–210。
吳麗英(2007).成年智能障礙者家庭生活品質現況之研究(碩士).國立嘉義大學.嘉義市。呂如分(2005).中風病患主要照顧者生活品質及其相關因素之探討.長期照護雜誌,9(2),152-170。
呂建成(2016).家庭照顧者照顧智能障礙者之負荷研究.朝陽科技大學。Available from Airiti AiritiLibrary database. (2016年)
周月清、李婉萍、王文娟(2018).兩代 [三老] 家庭照顧轉銜與老年遷移;老年父母,中老年智障者與手足.臺大社會工作學刊(37),99-149。
林政緯、吳玉欣、陳怡媜、郭乃文、張瀚云、徐菁寧、陳天文(2013).腦性麻痺患者之照顧者生活品質探討:先導性研究.安泰醫護雜誌,, 19(4) ,1-8。
邱啟潤、許淑敏、吳瓊滿(2002).主要照顧者負荷、壓力與因應之國內研究文獻回顧.醫護科技學刊,4(4),273-290。 doi:10.6563/tjhs.2002.4(4).1
邱逸榛、黃舒萱、徐亞瑛(2004).阿茲海默氏症患者照顧者之疲憊,負荷與憂鬱之間的關係.長期照護雜誌, 7(4), 338-351。
姚開屏(2005).台灣簡明版世界衛生組織生活品質問卷之發展及使用手冊手冊(第二版)。臺北:世界衛生組織生活品質問卷臺灣版問卷發展小組。
孫佩雯(2005).學齡前自閉症患童主要照顧者人格堅毅,社會支持與生活品質之關係探討.長庚大學,桃園市。
孫怡、吳維紋、林寬佳、陳若琳(2016).探討發展遲緩幼童之父母親職壓力與生活品質之相關-以親職效能為中介變項.護理雜誌,63(5),33-43。
張惠玲(2012).中重度智能障礙者之主要照顧者壓力、生活品質相關因素研究-以屏東縣為例.(未出版之碩士論文),美和科技大學,屏東縣。張瑋佳(2016).台中市身心障礙者生活品質影響因素之研究.社會工作與兒童少年福利學系學位論文,1-120。
張鈺姍、陳泰瑞、陳明招(2004).阿茲海默症病人的腦波與精神病性病狀之關係.臺灣精神醫學,18(4),283-289。
張靜琪(2006).精神分裂症病患知覺烙印感,自我掌控信念,社會支持與生活品質之相關性探討.臺灣大學護理學研究所學位論文,1-140。
翁麗淑(2009):嘉義市國小啟智班學生主要照顧者社會支持、照顧壓力與生活品質關係之研究。未出版碩士論文,國立嘉義大學,嘉義縣。莊翠玲(2017).主要照顧者使用身心障礙者臨時暨短期照顧服務之探討 (碩士) .美和科技大學,屏東縣。許淑敏、邱啟潤(2004).主要照顧者對居家護理人員的互動需求及其相關因素之探討.護理雜誌,51(5),53-60。
郭文芳、簡姿娟(2009).探討居家呼吸器依賴患者其主要照顧者之照顧需求及相關因素.護理暨健康照護研究,5(4),302-311。
陳正芬. (2013).我國長期照顧體系欠缺的一角:照顧者支持服務.社區發展季刊,141,203-13。
陳弘儒(2015).台灣青少年憂鬱的性別特定模式之前瞻式研究:憂鬱與壓力,自我掌控信念,反芻風格之關聯.臺灣大學心理學研究所學位論文,1-108。
陳伶珠(2011).雙重老化智能障礙者家庭照顧經驗初探.台灣高齡服務管理學刊,1(1),138-165。
陳志道、蕭芝殷、郭綉汶、許秀卿(2015).安寧療護主要照顧者之健康狀態探討.安寧療護雜誌,20(3),217-230。 doi:10.6537/tjhpc.2015.20(3).1
陳貞吟、陳楚杰、蔡明足、沈玉卿、周歆凱、翁林仲(2008).影響居家長期照護病患主要照顧者生活品質因素之研究.長期照護雜誌,12(3),267-283。
陳燕慈、李旺祚(2016).頑固型癲癇病童生酮飲食治療對主要照顧者生活品質的影響.台灣醫學,20(4),335-343。 doi:10.6320/fjm.2016.20(4).1
黃嘉婷(2018).身心障礙主要照顧者採用機構教養決策歷程之研究.(碩士),玄奘大學,新竹市。Retrieved from https://hdl.handle.net/11296/5623r7黃馨萱(2015).國高中階段之多重障礙學生主要照顧者生活品質現況與影響因素的探討.(碩士),國立臺灣師範大學,台北市。葉濬彰(2011).社區老人的主觀社會地位,自尊,自我掌控信念與憂鬱之關係.中原大學心理學研究所學位論文,1-77。
賈淑麗、李怡娟(1999).介入措施對居家照護病患主要照顧者生活品質的影響.護理雜誌, 46(5), 31-43。doi:10.6224/jn.46.5.31
趙蕙方(2010)‧社區精神分裂病患生活品質與希望感、自我掌控信念之相關探討(未出版碩士論文)‧台中市:弘光科技大學。劉佳琪(2009).台灣身心障礙者老化與因應對策:以智障者為例.新興福利國家與高齡化社會:學習與創新研討會,新竹:玄奘大學。
蔡雨珊(2010).台灣主要照顧者身心健康及其影響因素之研究. (碩士) ‧亞洲大學,台中市。 Retrieved from https://hdl.handle.net/11296/wwgftz黎家銘、詹鼎正、李紹誠、梁忠詔、邱泰源(2018).基層醫師在長照 2.0 的角色和功能.台灣醫學,22(3),261-271。
鍾燕宜、潘雨辰、陳冠蘭、郭煌宗(2012).發展遲緩兒童主要照顧者之生活品質研究.身心障礙研究季刊,10(1),20-39。. doi:10.30072/jdr.201203.0002
衛生福利部統計處(2018).105 年身心障礙者生活狀況及需求調查報告第 一冊綜合報告,47 。2018 年 6 月 20 日,取自 https://dep.mohw.gov.tw/DOS/cp-1770-3599-113.html
衛生福利部(2018).「身心障礙者權益保障白皮書」,衛生福利部社會及家庭署,2018年9月14日,取自https://dpws.sfaa.gov.tw/commonch/home.jsp?menudata=DisbMenu&contlink=ap/whitepaper_view.jsp&dataserno=200810290001&mserno=200805220007&serno=200805220008。
羅淑芬、黃秀梨、劉雪娥、姚開屏(2002).燒傷病患主要照顧者生活品質及其相關因素之探討.台灣醫學,6(5),625-636。
西文部分
American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (DSM-5®): American Psychiatric Pub.
Aristotle, (1987). Nicomachean Ethics (M. Ostwald. trans.). New York: MacMillan Publishing Company.
Bengtsson-Tops, A. (2004). Mastery in patients with schizophrenia living in the community: Relationship to sociodemographic and clinical characteristics, needs for care and support, and social network. Journal of Psychiatric and Mental Health Nursing, 11, 298-304.
Chen, Y.L., Hsiung, P.C. & Pan, A.W. (2007). The study of the construct validity of the personal control scale with Rasch measurement model. Paper presented at the Pacific Rim Objective Measurement Symposium in June 16-19, Tao-Yuan, Taiwan.
Chou, Y., Pu, C. Y., Fu, L. Y., & Kröger, T. (2010). Depressive symptoms in older female carers of adults with intellectual disabilities. Journal of Intellectual Disability Research, 54(12), 1031-1044.
Chou, Y. C., Lin, L. C., Chang, A. L., & Schalock, R. L. (2007). The quality of life of family caregivers of adults with intellectual disabilities in Taiwan. Journal of Applied Research in Intellectual Disabilities, 20(3), 200-210.
Chou, Y. C., Pu, C., Kröger, T., Lee, W., & Chang, S. (2011). Outcomes of a new residential scheme for adults with intellectual disabilities in Taiwan: a 2‐year follow‐up. Journal of Intellectual Disability Research, 55(9), 823-831.
Chou, Y. C., Pu, C., Kröger, T., Lee, W., & Chang, S. (2011). Outcomes of a new residential scheme for adults with intellectual disabilities in Taiwan: a 2‐year follow‐up. Journal of Intellectual Disability Research, 55(9), 823-831.
Chung, L., Pan, A.-W., & Hsiung, P.-C. (2009). Quality of life for patients with major depression in Taiwan: A model-based study of predictive factors. Psychiatry Res, 168(2), 153-162.
Cohen, J., Cohen, P., West, S. G., & Aiken, L. S. (2003). Applied multiple regression/correlation analysis for the behavioral sciences. In: Mahwah, NJ: erlbaum (3rd ed.).
Ferrans, C. E., & Powers, M. J. (1985). Quality of life index: development and psychometric properties. Advances in nursing science.
Gadalla, T. M. (2010). The role of mastery and social support in the association between life stressors and psychological distress in older Canadians. J Gerontol Soc Work, 53(6), 512-530. doi:10.1080/01634372.2010.490691
Greenwood, R. M., Schaefer-McDaniel, N. J., Winkel, G., & Tsemberis, S. J. (2005). Decreasing psychiatric symptoms by increasing choice in services for adults with histories of homelessness. Am J Community Psychol, 36(3-4), 223-238. doi:10.1007/s10464-005-8617-z
Guillamón, N., Nieto, R., Pousada, M., Redolar, D., Muñoz, E., Hernández, E., Boixadós, M., Gómez‐Zúñiga, B. (2013). Quality of life and mental health among parents of children with cerebral palsy: the influence of self-efficacy and coping strategies. Journal of Clinical Nursing, 22(11-12), 1579-1590. doi:10.1111/jocn.12124
Hesselink, A. E., Penninx, B. W., Schlosser, M. A., Wijnhoven, H. A., van der Windt, D. A., Kriegsman, D. M., & van Eijk, J. T. (2004). The role of coping resources and coping style in quality of life of patients with asthma or COPD. Qual Life Res, 13(2), 509-518. doi:10.1023/B:QURE.0000018474.14094.2f
Hsiung, P. C., Pan, A. W., Liu, S. K., Chen, S. C., Peng, S. Y., & Chung, L. (2010). Mastery and stigma in predicting the subjective quality of life of patients with schizophrenia in Taiwan. J Nerv Ment Dis, 198(7), 494-500. doi:10.1097/NMD.0b013e3181e4d310
Honrnquist, J. O. (1989). Quality of life: Concept andassessment. Scandinavian Journal of Social Medicine, 8, 67-79.
Jang, Y., Haley, W. E., Small, B. J., & Mortimer, J. A. (2002). The role of mastery and social resources in the associations between disability and depression in later life. Gerontologist, 42(6), 807-813.
Jennings, J. (1987). Elderly parents as caregivers for their adult dependent children. Social Work, 32(5), 430-433.
Kavirajan, H., Vahia, I. V., Thompson, W. K., Depp, C., Allison, M., & Jeste, D. V. (2011). Attitude Toward Own Aging and Mental Health in Post-menopausal Women. Asian J Psychiatr, 4(1), 26-30. doi:10.1016/j.ajp.2011.01.006
Krokavcova, M., Nagyova, I., van Dijk, J.P., Rosenberger, J., Gavelova, M., Middel, B., Gdovinova, Z., & Groothoff, J.W. (2008) Mastery, functional disability and perceived health status in pa- tients with multiple sclerosis. European Journal of neurology, 15(11), 1237-1244.
Lee, C. F., Hwang, F. M., Chen, C. J., & Chien, L. Y. (2009). The interrelationships among parenting stress and quality of life of the caregiver and preschool child with very low birth weight. Fam Community Health, 32(3), 228-237. doi:10.1097/FCH.0b013e3181ab3b6a
Lopez, N. M., Ponce, S., Piccinini, D., Perez, E., & Roberti, M. (2016). From hospital to home care: Creating a domotic environment for elderly and disabled people. IEEE pulse, 7(3), 38-41.
Marchal, J. P., Maurice-Stam, H., Hatzmann, J., van Trotsenburg, A. S., & Grootenhuis, M. A. (2013). Health related quality of life in parents of six to eight year old children with Down syndrome. Res Dev Disabil, 34(11), 4239-4247. doi:10.1016/j.ridd.2013.09.011
Munro, B. H. (2005). Statistical methods for health care research(Vol. 1). lippincott williams & wilkins, p. 259-284.
Pearlin, L. I., & Schooler, C. (1978). The Structure of Coping. Journal of Health and Social Behavior, 19(1), 2-21. doi:10.2307/2136319
Pozo, P., Sarria, E., & Brioso, A. (2014). Family quality of life and psychological well-being in parents of children with autism spectrum disorders: a double ABCX model. Journal of Intellectual Disabil Research, 58(5), 442-458. doi:10.1111/jir.12042
Redman, B. K. (2003).Measurement tools in patient education. New York Springer Pub Co, 393-429. Retrieved form https://books.google.com.tw/books?hl=zh-TW&lr=&id=UujPKWzRuGAC&oi=fnd&pg=PA3&dq=Measurement+tools+in+patient+education&ots=_jgYFazMuQ&sig=nt2Psu91PLczpAtImPR8nSAj6Dc&redir_esc=y#v=onepage&q=Measurement%20tools%20in%20patient%20education&f=false
Rotter, J. B. (1954). Social learning and clinical psychology. Englewood Cliffs, NJ, US: Prentice-Hall.
Samoocha, D., Bruinvels, D. J., Elbers, N. A., Anema, J. R., & van der Beek, A. J. (2010). Effectiveness of web-based interventions on patient empowerment: a systematic review and meta-analysis. Journal of Medical Internet Research, 12(2), e23. doi:10.2196/jmir.1286
Schalock, R. L., Borthwick-Duffy, S. A., Bradley, V. J., Buntinx, W. H. E., Coulter, D. L., Craig, E. M., Gomez, S. C., Lachapelle, Y., Luckasson, R., Reeve, A., Shogren, K. A., Snell, M. E., Spreat, S., Tasse, M. J., Thompson, J. R., Verdugo-Alonso, M. A., Wehmeyer, M. L., Yeager, M. H. (2010). Intellectual disability: Definition, classification, and systems of supports: ERIC. American Association on Intellectual and Developmental Disabilities.
Schalock, R. L., Borthwick-Duffy, S. A., Bradley, V. J., Buntinx, W. H., Coulter, D. L., Craig, E. M., . . . Reeve, A. (2010). Intellectual disability: Definition, classification, and systems of supports: ERIC.
Schieman, S., & Turner, H. A. (1998). Age, disability, and the sense of mastery. J Health Soc Behav, 39(3), 169-186.
Singleton, R. A., & Straits, B. C. (2005). Approaches to social research 4th ed.). New York: Oxford University Press.
Steptoe, A., & Wardle, J. (2001). Locus of control and health behaviour revisited: a multivariate analysis of young adults from 18 countries. British journal of Psychology, 92(Pt 4), 659-672.
Testa, M. A., & Simonson, D. C. (1996). Assessment of quality-of-life outcomes. New England journal of medicine, 334(13), 835-840.
The World Health Organization Quality of Life Assessment (WHOQOL): development and general psychometric properties. (1998). Soc Sci Med, 46(12), 1569-1585.
The World Health Organization Quality of Life Assessment (WHOQOL): development and general psychometric properties. (1998). Soc Sci Med, 46(12), 1569-1585.
Xiang, Y. T., Luk, E. S., & Lai, K. Y. (2009). Quality of life in parents of children with attention-deficit-hyperactivity disorder in Hong Kong. Aust N Z J Psychiatry, 43(8), 731-738. doi:10.1080/00048670903001968
Zhan, L. (1992). Quality of life: conceptual and measurement issues. J Adv Nurs, 17(7), 795-800.