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研究生:李靜姝
研究生(外文):Ching-ChuLi
論文名稱:泛自閉症患者父母的疾病覺知與烙印
論文名稱(外文):ILLNESS REPRESENTATIONS AND STIGMA OF AUTISM SPECTRUM DISORDERS IN PARENTS WITH AUTISTIC CHILDREN
指導教授:徐畢卿徐畢卿引用關係
指導教授(外文):Bih-Ching Shu
學位類別:博士
校院名稱:國立成功大學
系所名稱:健康照護科學研究所
學門:醫藥衛生學門
學類:護理學類
論文種類:學術論文
論文出版年:2020
畢業學年度:108
語文別:英文
論文頁數:152
中文關鍵詞:泛自閉症父母烙印疾病覺知
外文關鍵詞:Autism Spectrum Disorders (ASD)ParentsStigmaIllness Representations
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Table of Contents
ABSTRACT………………............................................…………………..I
ACKNOWLEDGEMENTS….............................................……………...IV
TABLE OF CONTENTS……............................................……………...VI
LIST OF TABLES…………………............................................………..IX
LIST OF FIGURES………………..............................................………..XI
CHAPTER 1 INTRODUCTION…............................................………....1
1.1 Background…………………............................................………...1
1.2 The aims of this study………............................................……...5
1.3 Research questions.…………….............................................…..6
CHAPTER 2 LITERATURE REVIEW…...........................................…….7
2.1 Autism Spectrum Disorders (ASD).............................................7
2.1.1 Epidemiology………....…..……...........................................…..7
2.1.2 ASD and culture…………................................................…….11
2.2 Parents of children with ASD…............................................…..14
2.2.1 Parenting experiences……............................................…..…14
2.2.2 Gender differences.…............................................……..…….19
2.3 Stigma……………………............................................…….…..….21
2.3.1 Concept of stigma…………..…….............................................21
2.3.2 Stigma among parents of children with ASD…........................23
2.4 Illness Representations……………………...…..……………………...26
2.4.1 Concept of illness representations and related studies…….….26
2.4.2 Illness representations of parents with an autistic child……....29
CHAPTER 3 METHODS…….……………………………….…………….……32
3.1 Research design………………………………………..…...……..……..32
3.2 Quantitative phase………………………….….………….....….………35
3.2.1 Research design……………...………………………………...………35
3.2.2 Term definition………………………….………….………….……….35
3.2.3 Setting and participant…………………...…….….………….……..36
3.2.4 Instruments…………………………….……………………….……….37
3.2.5 Data collection……………………..……..…………………….……...42
3.2.6 Data analyses…………………...…………………….………….…….43
3.3 Qualitative phase……………..………………..…………………….…..45
3.3.1 Research design……….…………..……………...…………….……..45
3.3.2 Setting and participants…..……………...…………..………………45
3.3.3 Data collection………….……………………………….…….………..45
3.3.4 Data analysis…………...……...………………………………...……..46
3.3.5 Study rigor……………………………………..………………….……..47
3.4 Ethical consideration…………………………..………………….……...48
CHAPTER 4 RESULTS……………………………………………………………49
4.1 Quantitative Section……………………………………...………….……50
4.1.1 Demographic characteristics……………………..……………….….50
4.1.2 Descriptive analysis of illness representations and affiliate stigma…55
4.1.3 Differences of illness representations and affiliate stigma between the two groups of parents………….........................................................61
4.1.4 Factors related to affiliate stigma…………...…………...…………85
4.1.4.1 Related factors of affiliate stigma in ASD parents……….......85
4.1.4.2 Related factors of affiliate stigma in ASD fathers...…………..89
4.1.4.3 Related factors of affiliate stigma in ASD mothers……………92
4.2 Qualitative section………………………………………………………...95
CHAPTER 5 DISCUSSION…………………………..………..………….…....103
5.1 Parent’s illness representations of ASD……..………….…………..103
5.1.1 Individual beliefs about illness………..………….…...……………103
5.1.2 Causal belief…………………………….……………….……………..105
5.2 Parent’s affiliate stigma……………..…………….………….………...108
5.3 The relationships of illness representations and affiliate stigma...110
CHAPTER 6 LIMITATIONS AND SUGGESTIONS……………………..…….112
6.1 Limitations…………………………………………………………….......112
6.2 Suggestions………..……….………………………………………….....114
REFERENCES………………………...……….………………………………….115
APPENDICES……………………………....…………………………………….125
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