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研究生:黃惠郁
研究生(外文):Huei-Yu Huang
論文名稱:癌症病童父親喪子的調適經驗
論文名稱(外文):The Adjustment Experiences of Fathers After the Loss of a Child to Cancer
指導教授:黃秀玫黃秀玫引用關係
指導教授(外文):Hsiu-Mei Huang
口試委員:李慈音高千惠
口試委員(外文):Tzu-Ying LeeChien-Huei Kao
口試日期:2022-07-18
學位類別:碩士
校院名稱:國立臺北護理健康大學
系所名稱:護理研究所
學門:醫藥衛生學門
學類:護理學類
論文種類:學術論文
論文出版年:2022
畢業學年度:110
語文別:中文
論文頁數:55
中文關鍵詞:癌症病童喪子父親調適經驗
外文關鍵詞:children with cancerfather who lost a childadjustment experience
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研究背景:雖然隨著醫療科技的進步,癌症病童治癒提升,但仍有癌症病童可能會面臨死亡,當癌症病童在治療過程中進入無法治癒的階段,病童及家庭將會進入到生命末期與面臨死亡的歷程。就父親角色而言,往往被教育要有責任感、勇敢等堅強的正面形象,所以當父親面臨癌症病童死亡,可能會壓抑自我情緒以及減少悲傷的表達,因此可能阻礙父親在經歷喪子的調適過程。
研究方法:本研究採用質性研究以立意取樣(purposive sampling)方式進行收案,採半結構式訪談,訪談8位癌症病童喪子父親。收案來源為某醫學中之兒童癌症病房,收案對象為經歷癌症病童過世之父親,本資料收集期間自2021年10月至2022年4月止。
研究結果:本研究結果歸納出癌症病童父親面臨喪子的調適經驗共七個主題:「放下手邊工作,爭取能陪伴孩子的時間」、「回想治療,感受到遺憾與矛盾」、「試著轉移自己的情緒」、「先讓自己堅強,兼顧家裡成員及生活」、「轉念,對未來寄予希望和慰藉」、「逝世的孩子,不曾遺忘」、「體悟人生的無常,珍惜現在」。
結論:癌症病童父親經歷喪子的歷程中,父親在孩子生命末期的階段會希望能夠多陪伴孩子。雖然父親在喪子的階段心裡感到悲傷,對於孩子的治療感到遺憾與矛盾;但是就父親的角色而言,他們仍要轉移自己的情緒並擔任起照顧、安慰家人的責任。然而不管孩子過世多久,父親仍會思念孩子,不曾遺忘,在經歷孩子過世的歷程後,父親感悟到人生的無常,活在當下的重要性,更加珍惜眼前的生活。

Background: Mortality from childhood cancer is unavoidable, although the survival rate has improved due to the advances in treatments. Family members of dying children who cannot be treated are stricken with grief. However, fathers tend to pack their sorrow and bottle up their emotions because they are expected to be responsible, fearless, and stoic. Therefore, bereaved fathers are unlikely to feel relief after their children's death due to role expectations.
Methods: This research adopts the qualitative research method, purposive sampling, to collect cases. Semi-structured interviews are used to interview 8 fathers whose children died from cancer. The source of the cases is one of the children’s cancer wards in a hospital. The data were collected from October 2021 to April 2022. Results: This study classifies bereaved fathers’ experience in emotional adjustment into 7 categories: (a) keep children company and put the work aside; (b) recall the treatment with mixed feelings; (c) distract from sadness; (d) be strong and take care of family members and life; (e) anticipate the future with hope and comfort by thinking from different angles; (f) realize the departed children are never forgotten (g) accept the uncertainty and live in the moment.
Conclusion: Fathers want to accompany their children with cancer at the end-of-life. After the death of their children, fathers mourn the death and feel regretful and ambivalent toward the treatment. However, fathers are expected to be stoic and take responsibility for other remaining family members. On the other hand, no matter the how long the children die, fathers evermore cherish the memory of their kids. In the end, they realize the impermanence of life and learn to stay in the present.

中文摘要i
英文摘要ii
目次iii
表次v
第一章 緒論
第一節 研究背景與動機1
第二節 研究目的3
第三節 研究問題3
第四節 名詞界定4
第二章 文獻探討
第一節 癌症病童父職角色與壓力5
第二節 悲傷反應與調適7
第三節 父親面臨癌症病童生命末期因應經驗之相關研究9
第四節 父親面臨喪子的因應經驗之相關研究11
第三章 研究方法
第一節 研究設計24
第二節 研究對象24
第三節 研究工具25
第四節 資料收集25
第五節 資料分析26
第六節 研究嚴謹度26
第七節 研究倫理28
第四章 研究結果
第一節 受訪者基本屬性29
第二節 癌症病童父親喪子的調適經驗31
第五章 討論41
第六章 結論與建議
第一節 結論45
第二節 研究限制45
第三節 實務應用與建議46
參考文獻
中文部分48
外文部分50
附錄
附錄1 家庭基本資料本54
附錄2 正式訪談指引55
附錄3 人體試驗委員會審核通過文件56

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