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研究生:黃秀慧
研究生(外文):HUANG, HSIU-HUI
論文名稱:卵巢癌患者罹癌經驗探討:轉變與收穫
論文名稱(外文):A Study on the Experiences of Women Suffering from Ovarian Cancer : Transition and Acquistion
指導教授:林東龍林東龍引用關係
指導教授(外文):LING, DONG-LONG
口試委員:黃瑜如、侯建州
口試委員(外文):HUANG, YU-JU、HOU, CHIEN-CHOU
口試日期:2024-01-16
學位類別:碩士
校院名稱:高雄醫學大學
系所名稱:醫學社會學與社會工作學研究所
學門:社會服務學門
學類:社會工作學類
論文種類:學術論文
論文出版年:2024
畢業學年度:112
語文別:中文
論文頁數:109
中文關鍵詞:卵巢癌、身體心像、性別角色、性別角色
外文關鍵詞:Ovarian cancer、body image、gender roles、intimate relationships
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近年來,我國女性卵巢癌的發生率攀升且罹癌年齡有年輕化跡象。罹患卵巢癌與後續治療過程除造成身體不適外,因病灶處為女性特有性徵,亦可能衝擊女性患者原有身體心像、親密關係及性別角色等等。究竟卵巢癌患者罹癌過程中,如何面對摘除卵巢的醫療決策、產生哪些衝擊,同時,身體心像、女性角色有何轉變,為本研究關注議題。
本研究以深度訪談法,蒐集八名罹患卵巢癌且已完成療程之患者的罹癌經驗,並進行訪談文本分析。本研究發現有五:一、受訪者進行醫療決策考量,易受「化療損害身體機能」與「卵巢功能受損」兩因素之影響;二、罹患卵巢癌後受訪者所受之衝擊主要有兩面向,包含「心理面」以及「社會生活面」;三、多數受訪者雖失去卵巢,但罹癌後扮演女性角色的態度卻因擺脫女性生理困擾、走過死亡威脅,成為更自在的女性,然其中一位受訪者則因失去卵巢後失去過去健康的親密關係,對丈夫感覺愧疚;四、不同年齡、類型的卵巢癌患者所感知到的衝擊經驗,會因「年齡高低差異」、「未來生育計畫的有無」、「器官位置的內隱」與「告別女性生理困擾」等緩衝因子的出現而有所不同;五、罹癌後,家庭成員支持、宗教信仰調適個人心態、病友團體等情緒性支持成為受訪者主要支持網絡,相較之下,正式資源提供的工具性支持有缺席的現象。本研究建議有二:一、提升民眾對卵巢癌的健康識能,破除負向標籤並提倡卵巢癌患者做女人之正向經驗;二、醫護團隊可協同社會工作者持續關注卵巢癌患者生育需求,並規劃醫療決策相關配套措施。

關鍵字:卵巢癌、身體心像、性別角色、親密關係

In recent years, the incidence of ovarian cancer among women in Taiwan has been increasing, and there is a trend towards a younger age at diagnosis. Besides causing physical discomfort, being diagnosed with ovarian cancer and undergoing subsequent treatment may impact female patients' original body image, intimate relationships and gender roles. This study focuses on how ovarian cancer patients face medical decisions regarding ovary removal, the resulting impacts, and the changes in body image and female roles during the cancer process.
Using in-depth interviews, this research collected experiences from eight ovarian cancer patients who had completed their treatment and conducted text analysis of the interview transcripts. The study identified five main findings: 1) Respondents' medical decision-making was influenced by considerations related to the "physical damage caused by chemotherapy" and the "impairment of ovarian function"; 2) The impacts experienced by ovarian cancer survivors were mainly categorized into "psychological aspects" and "social life aspects"; 3) Despite losing their ovaries, most respondents adopted a more liberated female role after cancer, free from physiological troubles and having faced the threat of death, although one participant felt guilty about the loss of a healthy intimate relationship with her husband; 4) Ovarian cancer patients of different ages and types experience varied impacts, influenced by factors such as "age disparities," "the presence of future fertility plans," "hidden aspects of organ location" and "mitigation of female physiological issues"; and 5) After cancer diagnosis, emotional support from family members, personal adjustment through religious beliefs and participation in patient support groups became the main support networks for respondents. In contrast, formal resources providing instrumental support were often lacking.
The study proposes two recommendations: 1) Enhance public awareness of ovarian cancer, eliminate negative labels, and promote positive experiences of ovarian cancer patients as women; and 2) Healthcare teams should collaborate with social workers to address the fertility needs of ovarian cancer patients and develop supportive measures related to medical decision-making.

Keywords: Ovarian cancer, body image, gender roles, intimate relationships

目錄
第一章 緒論 1
第一節 研究背景 1
第二節 研究動機 2
第三節 研究目的與問題 3
第二章 文獻探討 4
第一節 卵巢癌病因、治療、副作用及癒後情形 4
第二節 卵巢癌患者的社會心理衝擊 8
第三節 卵巢癌對女性角色的衝擊 13
第四節 卵巢癌患者的社會支持資源 19
第三章 研究方法 22
第一節 研究方法選取 22
第二節 研究對象選取 22
第三節 研究工具 25
第四節 資料搜集方法 26
第五節 資料分析方法 27
第六節 研究倫理 27

第四章 研究結果 28
第一節 患者進行醫療決策之考量 29
第二節 卵巢癌治療的挑戰與衝擊 31
第三節 卵巢癌前後的女性性別角色 40
第四節 劫後餘生:卵巢癌患者的資源網絡 60
第五章 討論 66
第一節 罹癌到新生:回看治療歷程 66
第二節 罹癌後女性性別角色的轉變 68
第三節 失去卵巢後衝擊減緩的因子 69
第四節 罹患卵巢癌後的支持資源 75
第六章 結論與建議 80
第一節 研究結論 80
第二節 研究建議 81
第三節 研究限制 83
參考文獻 85
附件一:問卷研究受訪者知情同意書 95

表目錄
表1受訪者基本資料表 23
表2受訪者罹癌前後的女性角色轉變與使用之支持資源對照表 41

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