參考資料
中文部分
中央健康保險局(2000,May15).全民健康保險呼吸依賴患者整合照顧前膽性支付方式試辦計劃.台北:中央健康保險局北區分局。
于博芮、高紀惠(1992)‧中風住院期間身心反應、社會支持及自我照顧能力改變之探討‧護理雜誌,39(2),67-77。王亞妮(1999)‧居家護理主要照顧者的負荷‧未發表碩士論文.台北:國立台灣大學。毛家舲、高麗蘭(1996)‧慢性疾病患者及其家屬的壓力與調適.醫學繼續教育,2(5),805-812。行政院衛生署(1997)‧全民健保支付制度之趨勢研習會:多元支付制度規劃‧台北:於中央健康保險局主辦.
史曉寧、黃愛娟(1996).家庭重病老人患者之主要照顧者壓力源和其家庭功能因素之探討‧榮總護理,13(2),138-146。江俊松(1994).脫離呼吸器的技巧.胸腔醫學,9(1),19-24。
江玲玲、陳淑如、蔡熒煌、謝文斌(1992).長期呼吸器使用的調查研究.長庚醫誌,16(2),99-104。
李麗香(1995)‧慢性病患主要照顧者的生活品質及其相關因素之探討‧未發表碩士論文,台北:國立陽明大學。
李玉春(1997).居家呼吸照護實驗計劃成本之分析研究.衛生署八十六年委託研究計劃成果報告
李淑霞、吳淑瓊(1998)‧家庭照顧者負荷與憂鬱之影響因素.護理研究,6(1),57-68。汪素敏(1997)‧心臟移植術後病人症狀困擾、社會支持與自我照顧行為相關之探討.國防醫學院研究所碩士論文。林家綾(2002)‧口腔癌病患身心社會調適與社會支持之相關性探討‧未發表碩士論文,台北:國立陽明大學。林梅香(1996)‧肝癌患者家屬主要照顧者的壓力、因應行為、健康狀況相關性之探討‧國防醫學院護理系研究所:碩士論文。林秀純、徐亞瑛、姚開屏、吳淑瓊(1999)‧台灣北部地區失能老人家庭照顧品質及其相關因素之探討‧護理研究,7(1),15-27。邱啟潤、呂淑宜、許玉雲、朱陳宜珍、劉蘭英(1988)‧居家中風病人主要照顧者對支持系統的感受.護理雜誌,35(1),69-83。
吳清平、楊式興、蔡珮漪、彭萬誠、顏鴻欽、江啟輝(2000)‧在醫學中心內新成立的呼吸照護中心使用呼吸器患者一年的預後分析.Taiwan Critical Care Medicine,2,1-14.
吳聖良、胡杏佳、姚克明(1991)台灣地區居家照顧老人主要照顧者負荷情形及其需求之調查研究.公共衛生,19(2),166-177。吳聖良、張瑛昭、林豐雄、姚克明(1992)‧省社區殘障老人主要照顧者之壓力與需求之調查研究‧台灣省公共衛生研究所。吳淑瓊、林惠生(1999)‧台灣功能障礙老人家庭照顧者全國概況剖析.中華衛誌,18(1),44-53。
柯識國(2002)‧苯酮尿症患孩母親之壓力源與因應行為及其相關因素之探討‧台灣大學護理系研究所:碩士論文。
胡幼慧、王孝仙、郭淑珍(1995)‧家人照護失能老人的困境:一項質化與量化整合的研究‧公共衛生,22(2),99-113。胡綾真(1999)‧居家照顧癌症轉移病患之主要照顧者的照顧負荷、憂鬱、與生活品質之探討‧長庚大學護理系研究所:碩士論文。梁淑華(1997)‧腎病症後群患童母親之壓力源及調適行為‧台灣大學護理系研究所:碩士論文。徐亞英、張媚(1992)‧都市及鄉村設需居家殘病老人家庭照護工作及照護工作感受之探討‧護理雜誌,39(4),57-63。
倪同芳(2001) ‧呼吸器病患生活品質及其相關因素之探討.國立陽明大學:碩士論文。高淑芳、盧孳豔、葉淑惠、劉雪娥(1999).探討家庭功能、社會支持與社區殘病老人照顧負荷之關係‧護理研究,7(2),172-181。張麗銀(1998).探討慢性阻塞性肺部疾病患者對疾病因應方式及功能狀況之相關性.國立陽明大學:碩士論文。張黎路(2001)評估與照顧癌症患者呼吸困難之症狀.癌症病患的呼吸照護研習會,台北。
唐秀蘭(1991).頭部外傷住院病患家屬照顧者的壓力感受、社會支持與健康狀況間關係之探討.國防醫學院:碩士論文。黃璉華(1992).鄉村社區老人健康自評、信念、與行為.公共衛生,20,221-223。湯麉玉(1992).痴呆老年照顧的負荷及其相關因素之探討.台北大學研究所:碩士論文。
陳錦卿(1999).建立呼吸疾患患者醫療與社區間聯合照護體制.榮總護理、16(3)、242-245。郭淑娥(2000) .呼吸照護中心的病患、家屬需求及滿意度研究.長庚大學:碩士論文。
葉莉莉、薄景華(1999).台南地區居家呼吸器依賴個案居家照護之初步探討‧長期照護,3(1),40-42。
蔡熒煌(2001).脫離呼吸器及計劃性拔管.氣道處理及呼吸器的應用研習會,台中。
萬育維(1995).兩代之間研究的議題與反省:兼論相關政策的配合策略‧老人學術研究年鑑,207-222。
潘依琳、田聖芳、張媚(1998).居家臥床病人其主要照顧者之壓力源、因應行為與身心健康之探討.公共衛生,24(4),219-234。鄭雪英(1997).台北市植物人居家主要照顧者的社會支持、壓力與健康狀況之探討.未發表碩士論文‧台北:國立陽明大學。劉欣宜(2000).居家失能老人其主要照顧者的生活品質及其相關因素探討.未發表碩士論文‧台北:國立台灣大學。劉淑娟、蘇秀娟、謝美娥(1998).北市失能老人其主要照顧者資源需求之初探.長期照護2(2),31-47。
劉春年、胡月娟、李孟智(1998).住院中風病人主要照顧者負荷及其相關因素探討.公共衛生,25(3),196-210。盧崇正(1995).長期使用呼吸器的醫療倫理問題.臨床醫學,36(6),351-356。邊苗瑛、江玲玲、王家宏、朱家成(1993).長期依賴呼吸器病患呼吸照護方式之研究.衛生署保健處八十二年委託研究計劃。
羅淑芬、黃秀梨、姚開屏、劉雪娥 (2001).復健期病患照顧者壓力感受、社會支持及其相關因素.台灣醫學,5(1),28-37。
羅靜心(1990) .住院癌症病患家屬的因應及其因應策略之探討.私立東海大學社會工作研究所論文。
英文部分
Anderson, C., Linton, J., & Stewart-Wynne, E.(1995).A population-based assessment of the impact and burden of cargiving for long-term stroke survivors. Stroke, (26), 843-849.
Alexander, R. (1994).Family caregivers for people with AIDS in rural communities. AIDS Patient Care,8(4), 206-211.
Axelsson,B., & Sjoden,P.O.(1998).Quality of life cancer patients and their spouses in palliative home care. Palliative Medicine,12(1),29-39.
Archbold,P.G.,Stewart,B.J.,Greenlick,M.R., & Harvath,T.(1990).Mutuality and prepareness as predictors of caregiver role strain. Research in Nursing and Health,13(6),375-384.
Aronson,K.J.(1997).Quality of life among persons multiple sclerosis and their caregivers . Academy of Neurology,48(1),74-80.
Astedt-Kurki,P.,Paunonen,M.,& Paavilainen, E.(1999).Family members as a hospital patient: Sentiment and functioning of the family.International Journal of Nursing Practice, 5(3),155-163.
Baillie,V.,Norbeck,J.S.,&Barnes,L.E.A.(1988).Stress social support and psychological distress of family caregivers of elderly. Nursing Research,37(4),217-222.
Barber,C.E.(1988).Correlated of subjective burden among adult sons and daughters caring for the aged parents, Journal of Aging studies(2), 133-144.
Barush, A.S., & Spaid, W. M. (1989). Gender difference in caring:Why do wives report greater burden? The Gerontologist, 29(5), 667-676.
Barrera,M.,Sandler,I.N.,& Ramsay,T.B.,(1981).Preliminary development scale social support:Studies on college students, American Journal of Community Psychology, 9(4), 435-447.
Blank,J.J.,Clark,L.,Lingman,A.J.,& Atwood,J.R. (1996).Perceied home care needs of cancer patients and their caregivers. Cancer Nursing,12(2),78-84.
Bethoux,F.,Calmels,P.,Gautheron,V., &Minaire,P.(1996).Quality of life the spouse of stroke patient: A preliminary study. International Journal of Rehabilitation Research,19(4) 291-299.
Bull, M. J., Maruyama, G., & Luo, D.(1995).Testing a model for posthospital transition of family caregivers for elderly persons. Nursing Research,44(3), 132-138.
Burns,S.M.,Clochesy,J.M.,Hanneman,S.k.G.,Knebel,A.R.,&Shekleton,M.E. (1995).Weaning from long-term mechanical ventilation. American Journal of Critical Care,4(1),4-22.
Chou,K.R.(2000).Caregiver burden:A concept analysis. Journal of Pediatric Nursing, 15(6)
,398-407.
Cohen,S.,Kamarck,T.,& Mermelstein,R.(1983).A global measure of perceived stress.Journal of Health and Social Behavior,24(4),385-396.
Cohen, S., & Syme, S. L.(1985). Issues in the study and application of social support. IN S. Cohen, & S. L. Syme. (Eds). Social support and health, (pp3-22) ,New York:Academic press ,INC.
Criner,G.J.&Kreimer,D. T.(1994).Overview of improving tolerance of long-term mechanical ventilation .Critical Care Clinics,10(4),845-866.
Dale,L.,Gallant,M.,Kilbride,L.,Klene,D.,Lyons,A.,Parnin,L.,Soderquist,S.,&Wilder.(1997). Stroke caregivers:Do they feel prepared? Occupational Therapy in Health Care,11(1),39-53.
Davidhizar,R(1992).Understanding powerlessness in family member caregiver of the chronically ill. Geriatric Nursing ,34(1),66-69.
Dorsey,M.K.,Vaca,K.J.(1998).The stroke patient and assessment of caregiver needs .Journal of Vascular Nursing,16(3),62-67.
Dunne,P.J.(1994).Demographics and financial impact of home respiratory care. Respiratory Care,39(4), 309-320.
Engberg, I.B.(1991).Giving up and withdrawal by ventilator treated patients:nurses experience. Intensive Care Nursing,7, 200-205.
Fink, S. V. (1995). The influence of family resouces and family demands on the strains and well-being of caregiving families. Nursing Research, 144(3), 139-145.
Flanagan,J.,&Holmes,S.(2000).Social perception of cancer and their impacts: implications for nursing practice arising form the literature. Journal of Advance Nursing,32(3),740-749.
Fraser,J.,Henrichsen,T.,Mok,Q.&Tasker,R.(1998).Prolonged ventilation as a consequence of acute illness. Journal of Vascular Surgery,78(3),253-256.
Goldstone,J.,&Moxham,J.(1994).Weaning from mechanical ventilation. Assisted Ventilation (2th ed.)Britain:Ltd, Plymouth.
Given,B.,Stemmel,M.,Collin,C.,King,S & Given, C. W.,(1990). Responses of elderly spouse caregivers .Research in Nursing & Health,(13),77-85.
Hanneman,S.G.(1994).Multidimensional predictors of success of failure with early weaning from mechanical ventilation after cardiac surgery. Nursing Research,43(1),4-10.
Health Care Financing Adminstration.(1994)Chronic Ventilator Dependency Demonstration Project:Technical Advisory Panel Meeting. February 20 Washington DC.
Higgins,P.A.,(1998).Patient perception of fatigue while undergoing long-term mechanical ventilation incidence and association factor. Heart & Lung, 27(3), 177-183.
Horowitz,A.(1985).Sons and daughters as caregivers to older parents: differences in role performance and consequences.The Gerontologist, (6), 612-617.
House, J.,& Kahn, R. L.(1985).Measures and concepts of social support .In S. Cohen & S. L.Syme(Eds.)Social support and health.(pp.83-108).Orlando:Academic press.
Jardine, E., O’Tool, M.,Paton, J & Wallis, C.(1999).Current Status of long term ventilation of children in the United Kingdom: questionnaire survey .British Medical Journal 318,295-299.
Jardine, E.,& Wallis, C.(1998).Core guidelines for the discharge home of the child on long term assisted ventilation in the United Kingdom.Thorax,53,762-767.
Jalowiec, A.(1987). Jalowiec Coping Scale(revised).unpublish manuscript.School of Nursing. Loyola university of Chicago:Chicago
Jalowiec, A.(1995).Overview of Jalowiec Coping Scale.
Jessop,D.J., Riessman,C.K.,& Stein,R.K.(1988). Chronic childhood illness and mantal health. Journal of Developmental and Behavioral Pediatrics, 9(3), 147-156.
Johson,E.O.,Kamilaris,T.C.,Chrousos,G.P.,&Gold,P.W. (1992). Mechanisms of stress: A dynamic overiew of behavioral homeostasis. Neuroscience and Biobehavioral Reviews.16(2), 115-130.
Johnson,J.E(1998).Stress social support and health in frontier elders.Journal of Gerontological Nursing,24(5),29-35.
Keckeisen, M. E., & Nyamathi, A. M. (1990). Coping and adjustment to illness in the acute myocardial infarction patients. Journal of Cardivascular Nursing, 5(1), 25-33.
King,S.L.,& Gregor,F.M.(1992).Stress and coping infamilies of the critically ill. Critical Care Nursing,5(4),48-51.
Kyle,R. D., & Sachs, L. G.(1994). Perceptions of control and social support in relation to psychosocial adjustment to HIV/AIDS. AIDS patient Care, 8(6),323-327.
Kuiper,R.,& Nyamathi, A. M.(1991).Stressors and coping strategies of patients with automatic implantable cardioverter defibrillators. The Jourmal of Cardiovascular Nursing, 5(3), 65-76.
Langford,C.P.(1997).Social support:A conceptual analysis. Journal of Advenced Nursinh,25 (1),95-100.
Lazarus, R.S., & Folkman, S. (1984). Stress appraisal and coping. New York:Springer.
Levine, J., & Lawlor, B. A.(1991). Family counseling and legal issues in Alzheeimer’s diaease. Psychiatry Clinics of North America, 14, 285-296.
Lewis,S.M., Heitkemper,M.M.,&Dirksen,S.R.(2000).Medical-Surgical Nursing(5thed., pp.92 -106) .St. Louis:Mosby.
Low,J.,Payne,S., & Roderick,P.(1999).The impact of stroke on informal carers: A literature review. Social Science & Medicine,49(6),711-725.
Lwanga,S.K.,& Lemeshow,Sample size determination in health studies.Geneva: World health Organization.
Miller,J.F.(1992).Coping wiyh chronic illness overcoming powerless. Philadephia : F.A. Davis company.
Montgomery, R. J. V., Gonyea, J G., &Hooman, N. R.(1985). Caregiving and the experience of subjective and objective burden. Family Relation,34(1),19-26.
Norton,L.C.,(1989).Weaning the long-term ventilator dependent patient : Common problem and management. Critical Care Nursing, 9,43-52.
Noyes,J.(2000).Enabling young ventilator-dependent people to express their view and experiences of their care in hospital. Journal of Advanced Nursing, 31 (5) ,1206-1215.
O’Brien,M.T.(1993).Multiple Sclerosis: Stress and coping strategies in spousal Care. Journal of Community Health Nursing,10(3),123-135.
Op’tHolt,T.B., & Scanlan,C.L.(1995).Respiratory failure and the need for ventilatory support. EGANS Fundamentals of Respiratory Care(6th ed.) America: Mosby.
Parks, S. H., & Pilisuk, M.(1991).Caregiver burden : gender and psychological costs of caregiving. American Journal of Orthopsychiatry, 61, 501-509.
Pearson, J., Verma, S., & Nellett, C.(1988).Elderly psychiatric patient status and caregiver perceptions as predictors of caregiver burden..The Gerontologist,28(1), 79-83.
Periard, M.E.,& Ames,B.D.(1993).Life-style change and coping patterns among caregivers of stroke survivors. Public Health Nursing, 10(4),252-256.
Philips,L.R.(1999).Assessment of social support.In J.T.Stone, J.F.Wyman, & S. A. Salisbury (Ed.),ClinicalGerontological ursing(2th)(pp.155-173).Philadelphia: W.B.Saunders company.
Ponte,J.(1994).Indications for mechanical ventilation. Assisted Ventilation (2th ed.) Britain: Ltd, Plymouth.
Pratt, C., Wright, S., & Schmall, V.(1987). Burden,coping and health status: A comparison of family varegivers to community ndwelling and institutionalized Alzheimer’s patients. Gerontological Social Work with Families,99-112.
Prints-Feddrsen,V.(1990).Group process effect on caregiver burden.Journal of Neuroscience Nursing, 22, 164-168.
Rabkin,J.G.,&Struening(1976).Life event ,Stress and illness. Science194 (4269), 1013-1020.
Reimer, W.J.M., De Haan, R. J., Rokmders, P. T., Limburg, M., & Van den Bos, G. A. M.(1998).The burden of caregiving in partners of long-term stroke survivors. Stroke: A Journal of Cerebral Circulation, 29(8), 1605-1611.
Reinhardt,J.P.(1996).The importance of friendship and family support in adaptation to chronic vision impairment. Journal of Gerontology: Psychological Sciences,51B(5),268-278.
Roberts,S.L.(1987).A Framework for coping with stress and its application in patient care. Nursing Forum23(3),101-107.
Robinson, B. C.(1983).Validation of a caregiver strain index. Journal of Gerontology, 38(3),344-348.
Robinson-Smith , G., & Mahoney, C.(1995).Coping and marital equilibrium after stroke. Journal of Neuroscience Nursing,27,83-89.
Samuels, M.(1996).Long term ventilation. Paediatric Respiratory Medicine, 2,24-31.
Schumacher, K.L.(1996).Re-conceptualizing family caregiver : Family - base illness care during chemotherapy. Research in Nursing Health,19, 261-271.
Salye,H.(1956).The stress of life. New York :Mc Graw Hill.
Seneff, M. G., Wagner, D., Thompson, D., Honeycutt, C., & Siver, M, R.(2000). The impact of long-term acute-care facilities on the outcome and cost of care for patient undergoing prolonged mechanical ventilation. Critical Care Medicine, 28(2),342-350.
Stevenson, J.P.(1990).Family stress related to home care of Alzheimer’s disease patient and implications for support. Journal of Neuroscience Nursing ,22(3), 179-188.
Stewart, M. J.(1989). Social support instruments created by nurse investigators . Nursing research ,38(5), 268-275.
Stommel, M., Given, C W., & Given, B. G.(1990).Depression as an overriding variable explaining caregiver burden. Journal of Aging and Health,2(1),81-102.
Stoneman,Z., Crapps,J.M.,(1988).Correlates of stress,perceived competence, and depression among family care providers.American Journal on Mental Retardation,93(2).166-173.
Taylor, S. E.(1991).Health psychology.(2nded)(pp.191-259).New York:McGram-Hill.
Thiots,P.A.(1982).Conceptual,methodogical,and theoretical problems in stuying social support as a buffer against life stress. Journal Health Social Behavior, 23, 145-159.
Thoits,P.(1986).Social support as coping assistance. Journal of Consulting and Clinical Psychology, 54, 416-423.
Weitzner, M. A., McMillan, S. C.(1999). Family caregiver of life : Difference between curative and palliative cancer treatment setting .Journalm of Pain and Symptom Management, 17(6), 418-428.
Williams,A.(1994).What bothers caregivers of stroke victims? Journal of Neuroscience.Nursing,26(3),155-161.
Wonghongkul,T.,Moore,S.M.,Musil,C.,Schneider,S.,& Deimling, G.(2000). The influence of uncertainty in illness, stress appraisal, and hope on coping in survivors of breast cancer. Cancer Nursing,23(6),422-429.
Yee,J.L.,& Schulz,R.(2000).Gender differences in psychiatric morbidity among family caregivers:A review an analysis The Gerontologist,40(2),147-164.
Zarit, S. H.,Todd, P. A., & Zarit, J. M.(1987).Subjective burden of husbands and wives as caregivers: a longitudinal study. The Gerontologist, 26(2),260-266.